Hi, my name is Heather,
Do you know the David Bowie Song remade by Nirvana, The man who sold the world? Well that’s how I feel about my life and all the illnesses that I have had to live and deal with over the decades. SOLD-$1.50 at a yard sale and thank god we finally got rid of that scary mess of complications, what the hell is wrong with that--person--?? Yes, some people have made me feel less than human, at times, even my own husband.
My health issues started back in the late 80’s early 90’s. Yuppie Flu or ALL IN YOUR HEAD SYNDROME, not true! Over time the medical community has caught up, but what an up hill battle. So what am I talking about…Chronic Fatigue Syndrome, Fibromyalgia and the subsequent fall out of all the other illness’s that you can acquire because of this condition. It’s all about the immune system and what it can or can not tolerate. Some people are just lucky to be robust yet other people seem to be prone to the body attacking itself, hence autoimmune diseases. I have just recently found that having these conditions is not compartmentalized, they can have a ripple effect- causing problems with the normal functioning of many vital organs in our body. Creating even more heath issues, life threatening issues. I have been going between Doctor's (when I can afford to) and the internet for years to educate and learn but to what end? We need a much better... sorry--affordable--health care system to get actual treatment, and for doctors to realize the plight of people with these “left of center” conditions and how they can open doors to other major health concerns.
Let me digress a bit and just say, if I jump around a bit and mess up my illness chronology, i'm sorry--these illnesses have put me in that HORRIBLE category of brain fog/Confusion and lack of concentration that I'm sure you know or feel.
The thing that upsets me most is the function level. One day your rolling along pretty good or o.k. the next the carpet is ripped out from under you.
Bang! Your life will NEVER be the same. As a result of all these medical conditions I can't work--financial hardship, loss of friends & family, they can't understand or relate.... or just don't want to.
More family static because of needing their help in every way possible and last but not least just being the black sheep.
Do you know the David Bowie Song remade by Nirvana, The man who sold the world? Well that’s how I feel about my life and all the illnesses that I have had to live and deal with over the decades. SOLD-$1.50 at a yard sale and thank god we finally got rid of that scary mess of complications, what the hell is wrong with that--person--?? Yes, some people have made me feel less than human, at times, even my own husband.
My health issues started back in the late 80’s early 90’s. Yuppie Flu or ALL IN YOUR HEAD SYNDROME, not true! Over time the medical community has caught up, but what an up hill battle. So what am I talking about…Chronic Fatigue Syndrome, Fibromyalgia and the subsequent fall out of all the other illness’s that you can acquire because of this condition. It’s all about the immune system and what it can or can not tolerate. Some people are just lucky to be robust yet other people seem to be prone to the body attacking itself, hence autoimmune diseases. I have just recently found that having these conditions is not compartmentalized, they can have a ripple effect- causing problems with the normal functioning of many vital organs in our body. Creating even more heath issues, life threatening issues. I have been going between Doctor's (when I can afford to) and the internet for years to educate and learn but to what end? We need a much better... sorry--affordable--health care system to get actual treatment, and for doctors to realize the plight of people with these “left of center” conditions and how they can open doors to other major health concerns.
Let me digress a bit and just say, if I jump around a bit and mess up my illness chronology, i'm sorry--these illnesses have put me in that HORRIBLE category of brain fog/Confusion and lack of concentration that I'm sure you know or feel.
The thing that upsets me most is the function level. One day your rolling along pretty good or o.k. the next the carpet is ripped out from under you.
Bang! Your life will NEVER be the same. As a result of all these medical conditions I can't work--financial hardship, loss of friends & family, they can't understand or relate.... or just don't want to.
More family static because of needing their help in every way possible and last but not least just being the black sheep.